Thank you for sharing your story Matthew Lefleur. Finding purpose and meaning is different for all of us. Love how you ended your story, thank you... "I think it’s impossible for us to know if everything happens for a reason or if it’s all random. But no matter what we face — a challenging diagnosis, the death of a loved one, an unexpected breakup or job loss — one thing seems true: It’s up to us to find a meaning for and assign a reason to whatever happens to us, wonky genes and all."
Columnist Matthew Lafleur reacts to the expression "everything happens for a reason." But living with a rare disease is never cut and dry.
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